Dr. Ernesto Bongarzone receives 2023 Sue Rosenau Award
Dr. Ernesto Bongarzone receives 2023 Sue Rosenau Award Winner Heading link
Please join me in congratulating Dr. Ernesto Bongarzone on being named the recipient of the 2023 Sue Rosenau Legacy Award. The Legacy of Angels Foundation (TLOAF) created this award in 2019 to honor the late Co-Founder and Chief Operating Officer, Sue Rosenau. Sue, a remarkable and driven wife, mother, and rare disease advocate lost her 3-year battle with ovarian and serous endometrial cancer in July of 2018. To keep Sue’s legacy alive within the foundation and community at large, TLOAF honors an individual each year for his/her achievements in Sue’s name. TLOAF selected Dr. Bongarzone because his work and commitments align with the Sue Rosenau Legacy Award conditions. The purpose of this award is to recognize an inspirational leader who collectively creates lasting change and measurable differences in one or more areas of our mission. Dr. Bongarzone is a recognized expert in the field of Krabbe disease which is one of the primary focus areas for TLOAF. Krabbe disease is a rare, inherited degenerative disorder of the central and peripheral nervous systems. Co-founders, Paul and the-late Sue Rosenau were impacted by Krabbe disease as their first granddaughter was diagnosed in July of 2001. Makayla lost her battle with Krabbe disease in May of 2003. Congratulations Ernesto on this well-deserved recognition.